I ran across this great article by Linda, “the Gluten Free Homemaker.” I can totally relate to this! On the normal lists of celiac symptoms, you don’t usually find this information.
I don’t have the typical stomach symptoms of a celiac. A few months ago, I started noticing that I was always very tired and lethargic. It was really affecting my daily life. This lead me to finally switching to a gluten free diet. Here is Linda’s article….
How Gluten Affects Me Mentally
Part 1 – The Witch
It was about six months after being diagnosed with celiac disease when I had my first major reaction. I was fixing gluten-free toast in my gluten-free toaster. I remembered getting a plate out, so when I saw crumbs on the plate I assured myself that I must have set the bread on the plate before putting it in the toaster.
The symptoms hit several hours later as I was driving home from a soccer game. Even though it was morning I was suddenly very sleepy. Then my belly began to rumble. I dashed into the house and made a beeline for the bathroom. After that I slept and woke up feeling pretty normal, except for one thing. I was very irritable. Very, very, irritable. For the next week I yelled at my kids and was angry about everything. I hated it. One thought kept going through my mind, “I feel like I’ve turned into a witch!”
That series of symptoms, becoming very sleepy, the bathroom thing, and then longer lasting mental issues, became the pattern for many of my reactions to accidental ingestion of gluten. My mental reactions weren’t always the same, though.
Part 2 – The Salesman
I don’t remember how I got glutened this time, but I clearly remember how I reacted mentally. I was totally apathetic. I didn’t care about anything or anyone. I didn’t like or dislike. I didn’t love or hate. I could live or die. I wasn’t depressed; I just didn’t care.
I remember explaining my mental state to my husband one evening. It was the one symptom that worried us both. However, I awoke the next morning and informed him that my status had changed. I now cared about life very much, and I was mad about everything. Beware!
We had plans to do some furniture shopping that day, and we went ahead with it. My husband wasn’t about to leave me alone so we might as well go out and do something. The problem was salespeople. I had no tolerance for them. My husband did all the talking, but after our third stop, I was losing it. The salesman would not take a hint and leave us alone. He kept pestering. He kept talking. I finally told him to shut up. Well, not really to his face. I was standing back a bit, but he might have overheard me. He did leave us alone.
So why does gluten affect me and others this way?
Part 3 – The Doctor
I think I almost cried as I sat listening to someone who truly understood. He didn’t understand because of personal experience. He understood because of medical knowledge. He explained how and why I have mental reactions to gluten.
Dr. Allesio Fasano, director of the Center for Celiac Research, spoke at a support group meeting. The room was packed, and we were all soaking in the information he was feeding us. In particular, his explanation of why celiacs have mental reactions to gluten stuck in my mind.
Intestinal permeability is part of the reaction that takes place when someone with celiac disease eats gluten. To put it simply, molecules that should be kept within the intestines are able to “leak” out into the bloodstream. Gluten is one of those molecules. When gluten is carried by the blood to the brain, it causes problems. Dr. Fasano explained that the gluten molecule is similar to endorphins which, along with other things, give us a sense of well-being. The gluten molecules will dock where endorphins are supposed to dock. In effect, gluten blocks endorphins and the positive feelings they can give us.
Thankfully, I haven’t had a bad mental reaction in a long time, but it could happen again. I hope it doesn’t happen to you, but if it does, I hope it helps to have an explanation and to know you are not alone.
Nice post – I like your blog, it’s good to read about what you’re going through. My father-in-law has been a celiac for many years and we’ve worked hard to find foods and beer (Redbridge) that he enjoys. I have a food blog and just posted about a Minneapolis bakery called Madwoman Foods that is really great and does mail order if you’re interested: http://www.simplegoodandtasty.com/?p=34. Best of luck to you, be in touch.
I truly know what you are all going through. I was diagnosed with Celiac disease when I was nine years old, I am now 19, and gluten affects me mentally in a very similar way. I get very irritated and have low tolerance for everything when I have consumed even a small amount of gluten. I also feel very alone and depressed. At first, I wasn’t sure why I felt this way but now I am aware that I am not just crazy and there is a reason for it. It is very difficult to control but after a couple of days I begin to feel like my normal self. I’m happy to know that I am not alone when it comes to mental symptoms caused by consumption of gluten.
Thank you for this blog. It makes me feel justified in my desire to try living gluten-free for a few weeks. I am a wife and a mother of two. I have been trying to find the source of my depression and anxiety. Major life changes have had some effect, but I feel like there is something else. I cut lactose out of my diet (that excluded stomach pains), I have been exercising, eating fruits and vegetables, and trying to get enough sleep (well, most of the time). I even lost a bunch of weight to get to a healthy weight, and I still felt depressed, irritable, unmotivated in life, etc. I did some reading and decided gluten-free was worth a try. I thought it was silly of me to think that gluten was causing all this. But after being off gluten for 4 days– only 4 days, I already feel like a happier person. I can smile again– without forcing it. Not sure if it’s the gluten, but I am glad to know that I am not the only one who believes gluten can affects our mental state… thank you.
Very interesting to read this artical. I can relate to this. I’ve have been Gluten free for about 9 months after about 2 years of tests to try and work out what was causing my dizzy spells heart palpitations and lack of energy. It took a couple of weeks to start feeling half normal and then another 6 months to feel 95% better. I’ve been glutenated acou0ple of time and its always the same 4-6 hours after eating a dash to the bathroom really bad stomach, then an hour or two afterwards the stomach pain has gone. But then a day – 2 days afterwards I feel shaky and a bit dizzy, tired and a feeling of just wanting to do nothing, that lasts a couple of days and then I am back to my usual self, nearly 100% but never quite right. I am a 35 year old male, its not just the ladies this effects even though most posts I read are from females. Thanks for the insight on why this happens.