Celiac & Gluten Free Statistics

Celiac Disease affects 3 million Americans. 1

  • Celiac Disease affects more Americans than Epilepsy(2.8M), Crohns(500k), Ulcerative Colitis(500k), Multiple Sclerosis(333k), Cystic Fibrosis(30k).  1

1 in 133 people have Celiac Disease. 1

  • 1 in 22 people with celiac disease have a first degree relative diagnosed. 5
  • 1 in 250 in Italy; 1 in 300 in Ireland.  3
  • 500,000 new Celiac diagnoses are expected to occur in the US by 2012 — thanks to efforts to raise public awareness of the disease.  6

1 in 4,700 people are ever diagnosed. 1

  • 97% of Americans estimated to have CD are not diagnosed.  6
  • The average length of time it takes for a symptomatic person to be diagnosed with celiac disease in the US is 4 years (11 years 6); this type of delay dramatically increases an individual’s risk of developing autoimmune disorders, neurological problems, osteoporosis and even cancer.  7
  • The average cost of misdiagnosis is $5,000 – $12,000 per person per year. Improving the time to diagnosis could save the health care system millions of dollars annually in unnecessary medical care.  6
  • 60% of children and 41% of adults diagnosed during the study were asymptomatic (without any symptoms).  7

People with Celiac Disease are 40 to 100 times at risk for gastrointestinal cancer. 1

  • About 3 to 8 percent of people with type 1 diabetes will have biopsy-confirmed celiac disease, and 5 to 10 percent of people with Down syndrome will be diagnosed with celiac disease.  5
  • 12% of people in the US who have Down Syndrome also have CD.  6
  • 6% of people in the US who have Type 1 Diabetes also have CD.  6

There are no signs or symptoms typical for all people with celiac disease. Signs and symptoms and can vary greatly from person to person. 2

  • CD has over 300 known symptoms although some people experience none.  6
  • Only 35% of newly diagnosed patients had chronic diarrhea, dispelling the myth that diarrhea must be present to diagnose celiac disease.  7
  • 30% of the US population is estimated to have the genes necessary for CD.  6

CD can present at any age from 6 months on. 4

  • Age of diagnosis is key: If you are diagnosed between age 2-4, your chance of getting an additional autoimmune disorder is 10.5%. Over the age of 20, that rockets up to 34%.  6

Women more affected than men. 4

The US Department of Agriculture projects that the GF industries revenues will reach $1.7 Billion by 2010. 6

GF foods are, on average, 242% more expensive then their non-GF counterparts. 6

  • 21% of patients with a positive anti-endomysial antibody test could not receive a biopsy due to the refusal of their physician to perform the procedure or the insurance company to pay for it.  7

The smallest amount of gluten which has been shown by a biopsy to cause damage to a Celiac is 0.1 gram per day – or 1/48th of a slice of bread. 6

There are currently 0 drugs available to treat CD. 6


References:

  1. National Institutes of Health via celiac.com 6/26/2007
  2. celiac.com 2/8/2007
  3. Reader’s Digest: Feb 2004 via wrongdiagnosis.com
  4. The 5-Minute Pediatric Consult, 2008 via wrongdiagnosis.com
  5. celiac-disease.emedtv.com 1/6/2007
  6. glutenfreeraleigh.blogspot.com 20/23/2008
  7. Univ. of Chicago Celiac Disease Center 02/2003
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20 Responses to “Celiac & Gluten Free Statistics”

  1. [...] are a number of Celiac Disease statistics scattered all over the internet, but Mike of Switch 2 Gluten Free did a great job of collecting these statistics in one convenient location.  Here are my two [...]

  2. This is great info gathered in one place. Thank you! I’ll be using this when submitting a request for gluten free cooking classes. Thanks!!!

  3. Jessika says:

    Wow, great information! I had never heard of some of the stats before, very interesting!

    - Jessika : Celiac Speaks – Symptoms, Recipes, Restaurants and Daily Life

  4. my mom suffered colitis last year and it was quite an expensive disease.-..

  5. [...] issue in Italy as they as a whole consume more products with wheat in it than any country.  In Italy, about one in two hundred and fifty people have celiac disease. In Ireland, about one in three [...]

  6. [...] than Epilepsy, Crohns, Ulcerative Colitis, Multiple Sclerosis, and Cystic Fibrosis reported Celiac.com.  For years, gluten free foods have been labeled with the a stigmatism of being expensive, hard to [...]

  7. [...] Resources:  Celiac Central* and Switch to Gluten Free** [...]

  8. [...] You can ask your relatives if anyone else has Celiac’s Disease or a sensitivity, since one in 22 people suffering from a gluten allergy have a relative who is as well. You can also try an elimination [...]

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