25 Random Things… Celiac Style

I ran across this list on Amy’s, The Savvy Celiac, Blog and thought it was too good not to pass on.  If you are on FaceBook, you can’t miss all the “25 Random Things About Me” posts.  This is Amy’s list, but I am going to insert some personal comments on most of the topics.

 

25 Random Things about Celiac Disease

1. Affects 1 in 133 Americans** (approximately 3 million)- 97% are undiagnosed* 

Shocking!  This means that 2.9 Million people do not know they have Celiac!  If it didn’t run in my family, and with my lack of the stomach type of symptoms, I would probably never be diagnosed. 

2. It takes an average of 4 years for a person with symptoms to get a celiac diagnosis*

My dad accepted that he had irritable bowel and was lactose intolerant for the majority of his life.  It took him over 20 years to be correctly diagnosed.  My sister went through many tests before they checked for celiac, even though it ran in our family.  

3. Gluten is a protein most-commonly found in wheat, barley, rye and some oats.

…you can’t just look for those 4 things on ingredient labels. 

4. There is no medicinal cure for celiac disease; a gluten-free diet is the only cure.

Not a bad cure, considering many diseases have no remedy.

5. Tons of money will be wasted trying gluten-free food you or the celiac in your family don’t like – but you’ll also probably find some foods you do like.

I used to base my meals on quantity for the cheapest price.  I can’t do this any longer.  I now have to experiment at home or pay extra for GF options at restaurants.

6. Sometimes dental teeth cleaning/polishing paste has gluten in it!

I’ll have to ask next time I go.  I’m pretty picky about my teeth, so getting my calcium is important.  Your body has trouble absorbing calcium when you are not a healthy celiac. 

7. Taking a hamburger patty off a regular bun does not “decontaminate” the meat of gluten.

Cross-contamination can ruin a meal that you thought was gluten free.  Even down to a restaurant using tongs on gluten foods then your GF food. 

8. There is no answer to “How sensitive is she?” when it comes to gluten reactions. It’s all bad.

This is an important one… Even though I don’t pay the price in the bathroom that most celiacs do, it is still damaging me the same.

9. Approximately 36,600 women may never learn that celiac disease is the cause of their infertility*

It takes a good amount of time for your intestines to heal and your body to get back to normal, so this could cost you valuable years of your life.

10. You can be constipated and have diarrhea at the same time.

Hmmmm….

11. Gluten-free baking takes a lot of trial and error.

I haven’t even attempted it.  Some people have great luck and others don’t.

12. Rochester, MN School District has a gluten-free lunch menu that serves 20+ students each day.

Great!  I think in 10 years, every school and every restaurant will be moving towards gluten free ingredients for most of their items.

13. A toaster used for regular bread will contaminate gluten-free bread.

Screw up once and it will cost you a new toaster.

14. Just because something is labeled “wheat-free” does not guarantee it is “gluten-free”.

This is a big mistake of uninformed people attempting to buy gluten-free.  This should not be allowed by the FDA.  I wonder if all the Doritos I’ve been eating are GF?

15. Celiacs must always have snacks with them, because gluten-free food can be hard to find.

Not only snacks, but sometimes your own condiments or foods to take into restaurants with you. 

16. Oil that fries breaded items, will contaminate gluten-free foods fried in the same oil.

Very true.  Some places will dedicate a fryer for just their french fries.

17. Gluten-free foods cost at least 3 times more than its gluten-filled counterpart***

Tell me about it… I just bought 6 tortillas for $5 vs. $1.50 for 10 normal ones. 

18. In Europe, the government subsidizes the cost of gluten-free food***

I don’t want to talk politics….. I’m not asking for a handout.

19. Gluten is toxic to a celiac’s gut, wiping out the villi or “fingers” in the small intestine which grabs nutrients from our food. Without the villi celiacs are malnourished.

Being malnourished leads to a million other health problems….

20. Osteoporosis, migraines, sinus issues, cancer, liver disease are all health problems that can happen because of undiagnosed celiac disease**

I think this is the biggest cause of misdiagnosing.  Someone may have one of these other problems, but the root cause is celiac.

21. Eating gluten-free doesn’t have to be difficult. Basic diet: meat, potatoes, vegetables and fruit!

If you are an optimist… having celiac will turn you into one of the most healthy people you know(if you stick to the diet)

22. Tons of people “Tweet” about celiac disease and the gluten-free diet on Twitter.

Add me!  Switch2GF  There is a lot of GF discussion on Twitter.

23. Most gluten-free baked goods must be frozen or they will go bad in 2-3 days on the counter.

Oops, I better go put that cake in the fridge… it has been out for days.  

24. Going on a gluten-free diet before being tested for celiac disease will likely cause a negative outcome on either the blood test or the biopsy of the small intestine.

It was suspected that this is the reason my dad’s bloodwork came back negative.  They eventually figured out that his body did not produce whatever they test for.  An endoscopy is the sure way to be tested. 

25. Most mainstream rice and corn cereals aren’t gluten-free because manufacturers add barley malt to them.

Rice Chex recently switched to GF!

*Source: University of Chicago Celiac Disease Center Fact Sheet

**Source: University of Maryland Baltimore’s Center for Celiac Research

***Source: University of Virginia Health System

 

Thank you Amy for a great list.  This is a list is extremely helpful for teaching people about celiac.

Gluten Free Margaritas

Sorry this took so long to post… someone had to drink all the samples….

Now that I can no longer drink beer… I have found satisfaction in margaritas.  Don’t get me wrong, nothing is as good as a nice cold, fresh Bud Light, but a lime or strawberry margarita(no salt, please) can at least take my mind off of beer(a nice cold, fresh Bud Light on a hot summer day).

This is my favorite recipe, courtesy of my uncle O.J.

“1 can of Bacardi’s margarita mix, or 1 can of frozen Limeade
8+ oz of tequila
4 oz of triple sec
1 oz of orange juice
Fill with ice and get the best blender that you can buy.”

*A whole 12oz can of Limeade can make them pretty sweet, so maybe use a little less.  A 10oz. can of Bacardi mix is just right buy generic viagra online!

*Depending on how frozen you want it, vary the amount of ice.

Delight Gluten Free Magazine

Check out this amazing new magazine! Delight gluten free is a fun food & lifestyle magazine for people with Celiac Disease, gluten intolerance and food allergies. It hosts delicious gourmet recipes and easy semihomemade as well. Don’t miss the Gluten-Free Meals on a Budget either. Whatever your food allergy you should be able to find something that fits your household, in their February issue they offer gluten-free, dairy-free, nut-free, egg-free, soy-free and even some rice-free recipes. Not only that, this magazine has a travel section coming in May that will host lots of fun ideas and good advice for when you venture out on the road. Personal stories, inspiring articles on Autism, Q & A with the Doc are among the other features of this magazine.

Subscribe to Delight Magazine!

Something for the ladies… Gluten Free Makeup!


kim1_2Makeup is one of those things we celiacs kind of forget about, but it can be a big issue, lots of ingredients, chemicals, and whatnot so how do you know what’s “safe?” After a few too many breakouts and puff-ups after spending a fortune at the makeup counter, I need a consultant!  Luckily I have a makeup artist in the family to demystify the cosmetic world for the allergy set. 

 

My sister has been a makeup artist for 10 years now and has dealt often with customers’ allergy concerns.  According to her, makeup is like food, you should always read your labels!  And if you have any questions, call the company, they know what’s in there and are willing to tell you.  MAC in particular is very aware of celiac issues. 

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MAC’s company policy on gluten states:

“While a formulation may contain no wheat, oat, barley or rye derivatives, for the benefit of our gluten-sensitive consumers who may have cross-sensitivities, MAC takes the extra precaution of including corn, rice and soy in our research.”

 

If you call their customer service with a particular product of concern, they’ll tell you if there’s gluten, corn, soy or whatever ingredient of issue is in there, so they’re very up on their allergies!

Another product line that is very aware of allergy concerns is 

 

Origins.  LOVE their stuff.  Origins is very good about listing ingredients, and they’re also very natural, so you don’t need an advanced degree in biochemistry to understand them! (BTW, I am in no way affiliated with these product lines, I just spend a ton of money on them!)

Most research says that celiacs can use cosmetic and hair products containing wheat and gluten products as long as there is no chance of ingesting them, as in lipstick or lip-gloss.  In any case, if you have any concerns about ingredients or the product in general, you should always call the company and they’ll tell you exactly what is in the product.  Cosmetic companies seem to be better than food companies at that…go fig…

Well, look fancy girls! Or guys, I don’t judge!  – Cheers!

Lindsay

Twitter

Blog

 

www.AfterglowCosmetics.com

A Well Stocked Pantry is a Celiac’s Best Friend

When I was diagnosed about 4 years ago, the food choices weren’t very good. Most of the stuff was really expensive and tasted like either cardboard or packing peanuts. Thanks to government food labeling and much more awareness there’s a lot more selection now, but I still like to do my own cooking, that way you know what’s in there!!! (Story time: I was lied to by a waitress at PF Chang’s who HAS a GF menu and got REALLY sick. Trust no one, kids!!)

So to keep all of you from getting sabotaged by a waitress at PF Chang’s, here are my favorite things to keep in the kitchen:

My 3-cup Hello Kitty Rice cooker!! You don’t need anything fancy, or Hello Kitty, but it’s fun, easy, and you just throw the rice and water in there and forget about it. You can even put it in when you leave in the morning, set the timer and it’s ready when you come home!

At least 3 kinds of rice; white jasmine or sushi, brown basmati, and brown or wild sweet, just for variety, flavor etc. It’s a great base grain and stretches out meals. Brown rice is really tasty, too, so that helps.

Rice pasta. Enough said. The ones with added rice bran in the ingredients, like Tinkyada taste most like real pasta. Trader Joe’s is great, too. Can’t beat the price. Be careful with sauce ingredients, though! Read those labels!!

Canned beans, black, red, garbanzo, makes for a really easy meal. Throw some white beans on pasta with canned tomatoes, instant protein!

Goya Adobo Light seasoning. You can use it on everything, and it’s gluten free!! Still haven’t found a good sub for soy sauce, though.

The Cuisinart Convection Bread Maker actually has a Gluten Free bread setting. The only one out there with one. I’ve had it for about 3 years now, and it’s still going strong. Saved a lot of money with that machine!

Flour…lots of flour…I try and buy it at Asian markets like H-mart, it’s a lot cheaper than the health food stores. Usually I try and keep white and brown rice flour, potato starch, tapioca starch and sweet rice flour in the house at all times. I’ll have garbanzo or something else if I have a recipe that calls for it, like that yummy brownie from BabyCakes NYC, but I can usually get by with those 5, alone or in some mixture.

I hope this helps people out a bit.

 

Cheers!

 

Lindsay

Twitter

Visit Lindsay’s blog

The Bacon Explosion is Gluten Free!!!

I love BBQ!  I am extremely excited that BBQ, with a gluten free BBQ sauce, is GLUTEN FREE!

I’ve run across this recipe all over the internet in the past couple days, and even on the evening news, so I figured I was missing out if I didn’t blog about it, especially since it is GLUTEN FREE!   My favorite food, besides pizza or a good steak, is probably bacon.  

Whoever came up with the Bacon Explosion is a genius!!

CLICK HERE FOR THE RECIPE and more pics(food porn)!

With the popularity of this recipe, their server has been overwhelmed recently.  Bookmark this and come back to it later.

The Long and Winding Road to Diagnosis…and then some…

Well, I was a normal college student, ate normal college food, drank normal college beer, up until the fall of 2001, the final semester of my senior year.  I actually had minor surgery and afterwards gastro problems hit me like a ton of bricks. 3 gastroenterologists, 1 internist, years of testing… I don’t even remember how many colonoscopies…2 upper GI’s, 2 endoscopies, 2 camera capsule tests, and riding on the train with unmentionable samples for the lab…no diagnosis. 

Finally, someone decides to do some allergy testing (only took 3 years…) lactose-negative (and I always thought I was allergic to that!), sorbitol-positive, Gluten blood test-weak positive… no one has explained that to me yet, but we do get confirmation from the dreaded ELIMINATION DIET!!!  Has anyone else battled that one?  It’s more obnoxious than anything else.  After a few weeks of just eating basic, bland foods, like rice, chicken and veg, one of the first things I added back was wheat.  Not fun.  Like being hit by a truck.  Barley did the same thing.  Corn makes me break out into a rash from another dimension!  I think positive though; as long as I’m not allergic to chocolate, I can be happy in this world.

The other issue I have with wheat is urticaria.  I get bilateral rashes, usually on both arms from eating wheat.  Nothing like being patchy in the summer!

I’ve been in denial at times…tried to add wheat back to my diet in small amounts (organic, non-fortified flours) but it isn’t worth it.  I’ve probably taken 2 years off my life in the process!  My issue is it’s a lot easier to avoid the gluten than to avoid the corn, that’s probably why I cheat on the wheat as much as I do.  So many things sub corn for wheat, it gets very hard, and my corn issues are much worse than the gluten ones.  Then again, I’ve become one hell of a cook…just ask my husband and my dog!  But food subs are another story for another day…Cheers!

 

Lindsay  from Pennsylvania

http://krabstitch.blogspot.com/

Twitter: ajasgaren

Gluten Free Bakeries! Map

Here is a map and list by state of the gluten free bakeries around the country, as of January, 2010. Please comment with a short review on the bakeries you have tried.   If you have any additions to the list, please comment about them, or email me.

There has to be more Gluten Free bakeries around the country!

National Chains:

Whole Foods Market *Call and check your location for specific days.

Breadsmith AZ, IL, MI, MN, MO, NJ, ND, OH, SC, SD, TX, WI

View Gluten Free Bakeries: Switch2GlutenFree.com in a larger map

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Alabama:

Alaska:

The Red Beet Palmer, AK

Arizona:

Gluten Free Country Store  Gilbert, AZ

Gluten-Free Creations Bakery Phoenix, AZ

New Frontiers Natural Market  Sedona, AZ

Short N’ Sweet Tempe, AZ

Arkansas:

California:

Amy Bakes Cupcakes Atascadero, CA

Azna Gluten Free Cameron Park, CA

The Sensitive Baker Culver City, CA

Julian Bakery La Jolla, CA

Aunti Gluten’s Bakery Livermore, CA

Babycakes Los Angeles, CA

Let Them Eat Cake Milpitas, CA

Mariposa Artisan-Crafted Gluten-Free Oakland, CA

Annette’s Gluten Free Bakery Pleasanton, CA

BabyCakes Baking Company Torrance, CA

Colorado:

Sweet Deliverance AKA Rheinlander Bakery Arvada, CO

Blue Ribbon Bakery Cedaredge, CO

Outside the Breadbox Colorado Springs, CO

Deby’s Bakery & Cafe Denver, CO

Connecticut:

Dee’s One Smart Cookie Glastonburry, CT

DePuma’s Gluten Free Pasta North Haven, CT

Delaware:

Florida:

Viitals Tampa, FL

Libery Bakery Oviedo, FL

Georgia:

Sally’s Bakery Sandy Springs, GA

Hawaii:

Idaho:

Illinois:

Swirlz Cupcakes Chicago, IL

Rose’s Bakery Evanston, IL

Gluten Free Cookie Passion Mundelein, IL

Indiana:

The Measuring Cup Fishers, IN

Iowa:

Kansas:

Olivia’s Oven Overland Park, KS

Kentucky:

Louisiana:

Truely Free Bakery & Deli Baton Rouge, LA

Maine:

Wildflowers Gluten-Free Market:  Brunswick, ME

Allergeena Gluten Free Bakery:  South Portland, ME

Maryland:

Massachusetts:

Michigan:

Sugar Kisses Bakery Berkley, MI

Coco Charlotte Grand Rapids, MI

It’s a Piece of Cake Kentwood, MI (Grand Rapids Area)

Minnesota:

Bittersweet Bakery Eagan, MN

Madwoman Gluten Free Bakeshop Minneapolis, MN

Cooqi Gluten-Free Delights St. Paul, MN

Mississippi:

Missouri:

Gluten Free Life Bakery Amity, MO

Andrea’s Fine Foods Chesterfield, MO (St. Louis Metro)

Beck’s Gluten Free Ellisville, MO

Free Range Cookies Ferguson, MO (St. Louis Metro)

My Gluten Free Bakery Jefferson City, MO

Kneaded Specialties Lee’s Summit, MO

Montana:

Nebraska:

Nevada:

New Hampshire:

New Jersey:

Miller’s Gluten Free Bread Co. Butler, NJ

Mr. Ritt’s Bakery Millville, NJ

New Mexico:

New York:

Jo-Sefs Gluten Free Brooklyn, NY

Shabtai Gourmet:  Far Rcokaway, NY

Sherry Lynn’s Gluten Free Latham, NY

Babycakes NYC New York City, NY

Donna Marie’s Gluten-Free Bakery Rochester, NY

North Carolina:

North Dakota:

Ohio:

Holiday Baking Co Worthington, OH

Tina’s Sweet Treats Franklin, OH

Oklahoma:

Oregon:

Living Earth Bakery Corvallis, OR

Tarte Eugene, OR

Gluten Free Goodies:  Medford, OR

Angelines Bakery Portland, OR

New Cascadia Traditional Portland, OR

Pennsylvania:

Sweet Christine’s Kennett Square, PA

Sweet Freedom Bakery Philadelphia, PA

Gluuteny Bakery Pittsburgh, PA

My Gluten Free Baker West Chester, PA

Rhode Island:

South Carolina:

South Dakota:

Tennessee:

A Bountiful Harvest Chattanooga, TN

Gluten Free Goodies Knoxville, TN

Texas:

Wild Wood Art Cafe Austin, TX

Sublime Bakery Forth Worth, TX

Little Aussie Bakery & Cafe San Antonio, TX

Utah:

Vermont:

West Meadow Farm Bakery Essex Junction, VT

Stowe Meadows Bakery Stowe, VT

Virginia:

Buzz Alexandria, VA

3 Fellers Bakery Goochland, VA

Washington:

Sunny Valley Wheat Free Kent, WA

8 Arms Bakery Olympia, WA

Giggles Gluten-Free Custom Bakery Pasco, WA

Washington D.C.:

West Virginia:

Wisconsin:

Silly Yak Bakery Madison, WI

Molly’s Gluten Free Bakery Pewaukee, WI

Wyoming: